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Resources
We’ve divided our resources section into five sections:
National Resources
Local Activities
Missouri Resources
Illinois Resources
Web Links

 

National Resources

National Down Syndrome Society (NDSS)
666 Broadway
New York NY 10012

Telephone 212-460-9330
Toll Free 800-221-4602
Fax 212-979-2873
Email info@ndss.org
Website www.ndss.org


National Down Syndrome Congress (NDSC)

1370 Center Drive, Suite 102
Atlanta, GA 30338

Telephone 770-604-9500
Toll Free 800-232-NDSC
Email mailto:info@ndsccenter.org
Website http://www.ndsccenter.org/


The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910

Telephone 301-565-3842
Fax 301-565-3843
Fax 301-565-5342
Website www.thearc.org

Local Activities

St. Louis Challenger Baseball is a baseball league for kids with disabilities, 8 years old and up.

For information, call (314) 822-2518.


Gateway Locomotives Hockey Club is a member of Special Hockey International.

For information, go to www.gatewaylocomotives.org.


Team Central Gymnastic Academy offers specialty gymnastics classes.

For information, telephone (314) 291-0101.


Special Needs Soccer Association, SPENSA is a not-for-profit, St. Louis-based soccer program for young people with disabilities. The program is mirrored after a national program created through the United States Youth Soccer Association.

For information, telephone 314-487-5111

Missouri

Ability Network. Ability Network is a Missouri provider of services and supports for individuals of all ages and all levels of ability. Their staff provides therapy and education in natural, inclusive environments such as homes, schools, and community settings.

13384 Lakewood Drive
Ste. Genevieve, MO 63670
Telephone: 573-483-3000
Fax: 573-483-3002
EMAIL: lelpers@abilitynetwork.org
WEBSITE: www.abilitynetwork.org

First Steps Services. First Steps Services is Missouri’s early intervention system for infants and toddlers with special needs. First Steps offers coordinated services and assistance to young children with special needs and their families. First Steps is designed for children, birth to age 3, who have delayed development or diagnosed conditions that are associated with developmental disabilities.

Telephone St. Louis City and County 314-993-3400
St. Charles County 636-896-9050
Jefferson County 314-402-8877
Website www.eikids.com/mo/matrix/
See also: http://www.dese.state.mo.us/divspeced/FirstSteps

St. Louis Arc. The mission of the St. Louis Arc is to provide the highest quality services to help individuals with developmental disabilities and their families achieve their goals.

Telephone 314-569-2211
TTD 314-569-2010
Fax 314-569-0778
Website www.slarc.org


Governor’s Council on Disability

Address
4811 Delmar Boulevard
St. Louis, MO 63108
Telephone 314-367-4325
Fax 314-367-1078
Email loberst@dolir.state.mo.us


Adapt-Ability, Inc. Serves a 100 mile radius of St. Louis with accessibility issues including adaptive aids and equipment, assistive technology, low vision services, occupational therapy, and physical therapy.

Address
9355 Dielman Industrial Drive
St. Louis, MO 63132
Telephone 314-432-1101
Fax 314-432-0780
Email adapt@inlink.com


Adult Vocational Services.
Serves Franklin, Jefferson and St. Louis counties, ages 14 through 55 with employment placement assistance, employment skill training, supported employment, and more.

Address
3581 Jeffco Boulevard
Arnold, MO 63010
Telephone 314-464-8094
Fax 314-464-3648
Email adultvs@swbell.net


Adaptive Mobility, Inc. Provides adaptive aids and equipment, ramps, vehicle adaptations.

Address
112 Algana Court
St. Peters, MO 63376
Telephone 636-926-2225
Fax 636-928-6386
Email mobile@adaptivemobile.com
Website www.adaptivemobile.com

Alzheimer’s Association. Serves 38 counties in eastern Missouri and western Illinois providing services such as aging programs and services, community education services, financial assistance, and outreach services.

Address
9374 Olive Boulevard
St. Louis, MO 63132
Telephone 314-432-3422
Fax 314-432-3824
Email kathy.o’brien@alzst.l.org
Website www.alzstl.org


Behavioral Consultants, PC.
Services include adult day programs, children’s counseling, classes and workshops, clinical psychology services, and mental health services.

Address
13230 Tesson Ferry Road
St. Louis, MO 63128
Telephone 314-843-0080
Fax 314-843-5655
Website www.behavioralconsultants.com


The Belle Center Inc. Serves Birth to age 12 in St. Louis City as well as Jefferson, St. Charles and St. Louis counties. Services include advocate training, children’s developmental training, communication disorders, therapies, developmental assessment, outreach services, evaluations.

Address
1265 Hanley Industrial Court
St. Louis, MO 63144
Telephone 314-962-1037
Fax 314-962-6034

The Child Day Care Association. Serves St. Louis City as well as Jefferson, St. Charles and St. Louis counties. Services include accommodations for students, advocacy services, books/video loan library, and community resource referral.

Address
4236 Lindell, Suite 300
St. Louis, MO 63108
Telephone 314-241-3161
Fax 314-531-4184


College for Living.
Serves St. Louis City and County. Provides continued education and supported employment services.

Address
311 North Lindbergh Boulevard
St. Louis, MO 63141-7842
Telephone 314-569-1324
Fax 314-567-1559

Department of Elementary & Secondary Education Special Education. Statewide department services people with all disabilities from birth to age 21. Handles client rights, complaints, conferences, information and education services, public awareness and education, school to work, sheltered employment, and special education.

Address
P.O. Box 489
Jefferson City, MO 65102
Telephone 573-751-4444
TTY 800-735-2966
Fax 573-526-4404
Website http://dese.mo.gov/divspeced/


Department of Special Education, Archdiocese of St. Louis.
Services Greater Metropolitan Area including St. Charles, St. Louis County and St. Louis City. Provides services for persons ages 6 to 21 including academic testing, special education, developmental disabilities job skills training program, and language/communication development.

Address
4472 Lindell Boulevard
St. Louis, MO 63108
Telephone 314-533-3454
Fax 314-533-0140
Email aspedstl@impersso.com


Gateway Accessible Housing I.
Serves persons 18 year of age and older with housing assistance and supported employment.

Address
1599 Gene Crayton Avenue
St. Louis, MO 63138
Telephone 314-741-6677
Fax 314-741-3615
Email gpval@nbacares.org


Gateway Accessible Housing I.
Serves persons 18 year of age and older with housing assistance, supported employment, and wheelchair accessible housing.

Address
6837 Olive Street
St. Louis, MO 63130
Telephone 314-725-6694
Fax 314-725-1082
Email gpval@nbacarcs.org


Gateway Regional Advisory Council.
Serves all people with developmental disabilities. Provides information and referral services as well as education on DD services/issues.

Address
211 North Lindbergh Boulevard
St. Louis, MO 63141
Telephone 314-340-6583
Fax 314-340-6585
Email sttgrac@inlink.com


Good Shepherd School for Children.
Provides services for children from 6 weeks to 6 years in St. Louis City as well as Jefferson, St. Charles and St. Louis counties. Services include an inclusive preschool, children’s programs, therapies, counseling, and scholarship assistance.

Address
1170 Timber Run Drive
St. Louis, MO 63146
Telephone 314-469-0606
Fax 314-469-3294

Howard Park Early Intervention Services. Serves children from birth to age 13 in Franklin, Jefferson, St. Charles and St. Louis counties. Services include child care program, development assessment, early childhood education, early intervention program, home based services, and therapies.

Address
265 Steamboat Lane
Ballwin, MO 63011
Telephone 636-227-2339
Fax 636-227-8711
Email howardpk@sbcglobal.net

Website www.howardpark.org


Office on the Disabled.
Servesall persons with disabilities in the City of St. Louis. Provides information and referral services, complaints, resource directory, and technical assistance.

Address
1200 Market Street
Room 30 City Hall
St. Louis, MO 63103
Telephone 314-622-3686
Fax 314-622-4019

Productive Living Board for St. Louis County Citizens with DD. Services provided to all persons with developmental disabilities in St. Louis County.

Address
121 Hunter Avenue
St. Louis, MO 63124
Telephone 314-726-6016
Fax 314-726-1907
TTY 314-726-0142
Email plboard@plboard.com
Website www.plboard.com


Program-Oasis Friends.
Serves persons age 55 and over in St. Louis City and County. Services provided includes aging programs and services, arts/crafts, buddy/companion programs, community inclusion, exercise program, and wellness programs.

Address
C/O Oasis Institute
7710 Carondelet
St. Louis, MO 63105
Telephone 314-721-6458
Fax 314-862-2149

St. Louis Children’s Hospital Therapy Services. Serves ages birth to 21 with augmentative communication services.

Address
One Children’s Place
St. Louis, MO 63110
Telephone 314-454-6213
Fax 314-454-2380
Email sheilaxh@bjcmail.org


St. Louis Community College at Florissant Valley Access Office Disability Support.
Services students with disabilities registered at the college providing academic support, academic tutoring, adaptive

Address
34090 Pershall Road
St. Louis, MO 63135
Telephone 314-595-4549
Fax 314-595-2181
TTY 314-595-4552
Email smatthews@fv.stlcc.cc.mo.us
Websitehttp://www.stlcc.edu/fv/access/text/general/staff2.html


St. Louis County Government Department of Human Services
. Serves all persons with disabilities in St. Louis County with services that include homeless outreach, aging programs and services, transportation, community resource referral, job placement, and job skills training.

Address
121 South Meramec
P.O. Box 16911
St. Louis, MO 63105-1725
Telephone 314-615-4446
Fax 314-615-4420
TTY 314-615-4425
Email carol+_kamil@stlouisco.com


St. Louis Office for Mental Retardation and Developmental Disability Resources. Serves persons with disabilities in St. Louis City with services such as employment skill training, respite care, transportation, residential services, early childhood education, leisure activities, family programs, and support groups.

Address
2334 Olive Boulevard
St. Louis, MO 63103
Telephone 314-421-0090
Fax 314-421-2525
Email mrdd@brick.net


St. Louis Regional Center for Developmental Disabilities
. Provides advocacy services, case coordination services, community placement community support, developmental assessment, and voter registration to all persons with disabilities.

Servicing St. Charles and St. Louis counties:

Address
211 North Lindbergh Boulevard
St. Louis, MO 63141
Telephone 314-340-6500
Fax 314-340-6522
TTY 314-340-6659

Servicing Jefferson county and St. Louis City.

Address
49th & Arsenal Streets Suite 1B
St.Louis, MO 63139
Telephone 314-877-0000
Fax 314-877-0079
TTY 314-877-0081

Illinois Resources

Child & Family Connections. Child and Family Connections is part of a statewide system responsible for ensuring that all referrals of children under the age of three to the Early Intervention Services System receive a timely response. Early Intervention provides services for children with disabilities or at-risk conditions. Children diagnosed with Down syndrome will be eligible for early intervention services.

Telephone 618-629-3399
Toll Free 888-594-8365
Website www.cfc-lic.org

Family Voices of Illinois. Advocates for health care for children and youth with special health care needs.

Telephone 773-274-8683
Toll Free 888-950-8683
Email familyvoicesillinois@yahoo.com
Websitehttp://familyvoices.org/st/IL.htm

STARNET Region IV. Support and Technical Assistance Regionally, STARNET provides a variety of opportunities for personal and professional growth. Parents and professionals both will find a great deal of resource including workshops and a lending library through STARNET.

Telephone 618-398-5280
Toll Free 800-942-7827
24 Hour Voicemail 618-397-8930 ex 166

Website http://www.stclair.k12.il.us/starnet

Impact, Inc. IMPACT is a Center for Independent Living (CIL) that provides advocacy services for people with disabilities in educational and employment situations

Telephone 618-462-1411
TTY 618-474-5333
Fax 618-474-5309
Email Goodwin@impactcil.org
Website www.impactcil.org


ARC of Illinois. This organization is committed to empowering person with disabilities to achieve full participation in community life through informed choices. See the web site for legislative issues in Illinois as well as services provided by the organization.

Telephone 708-206-1930
Fax 708-206-1711
Email tony@thearcofil.org
Website www.thearcofil.org

Illinois Life Span Project. The Illinois Life Span Project provides statewide information and referral to
advocacy resources, service points of entry and providers. This is a five-year partnership between the Arc of Illinois and the Illinois Council on Developmental Disabilities. The Council's investment calls for a central place for families to go for information and advocacy referrals through our toll-free hotline and by making information and resources available to families on our free website.

Telephone 708-206-3993
Toll Free 800-588-7002
Fax 708-206-1171
Email mike@illinoislifespan.org
Website www.illinoislifespan.org

 

Web Links
A recent simple search for Down syndrome provided approximately 1,290,000 links according to the search engine results. Massive! Here are some pages we have found helpful.


National Association of Down Syndrome
(NADS – Chicago organization)
Dr. Len Leshin’s site with health issues and web links
Down Syndrome Medical Checklist
Spanish version of DSMIG Guidelines

Down Syndrome Quarterly
Down Syndrome Educational Trust

Down Syndrome Information Network

Wrights Law for information concerning special education law and advocacy for children with disabilities
Disability Is Natural

 
Feel free to email tamaradsagsl@yahoo.com with your suggestions for any resources that we’ve missed!